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Newsletter #19: April 2018
Autism 30 April 2018 Newsletter
Most parents who have children with autism, myself included, often worry about what the future holds for their children. What will happen to my child when I am no longer here. This worry can keep us awake at night, for months, sometimes years on end. This note isn’t about the toll it takes on our physical and mental health, which can be dramatic. This newsletter is about what I’ve learned the world really needs.
We want to know that people who will help them with their finances will not take all their money and run. We want to know that if they are placed in group care that they won’t be abused, neglected and/or comatose sedated. We want to know that because many of our community members are honest will not be taken advantage of, or worse lead themselves into a dangerous situation unknowingly with no one to stop it from happening. We want to know that when they need help, there will be someone that they can truly count on. We also want to know that the provincial and federal government will do even more to improve policy that will better support our loved ones.
When I truly stop to think of it. It’s not really autism that I’m afraid of. I’m terrified about how unkind the world can be for them. When people ask me how can I help the world for our community members, there are many answers I can give them - but the one I always start off by saying is: You can be a good and kind citizen. Something everyone can do.
Let’s all think about the way we treat others. May that be a reflection of the way we want our offspring to be treated when we are no longer here.
Then maybe we can all sleep.
Upcoming podcasts: On April 15th Lonnie Belfer drops by our studio to talk to us about Avia Employment Services. May 1st will be Tina, Jess and Talie answering the questions you sent in on Parent Talk. We are always accepting new questions as well so keep sending them in.
Autism Canada releases comprehensive new report on Aging and Autism
(Toronto, April 4, 2018) Autism Canada is pleased to release a comprehensive report today on aging and autism.
The newly released Summary Report on Aging and Autism is the first comprehensive report of its kind in North America and comes out of an international delegation of autistic seniors, clinicians and researchers co-hosted by Autism Canada. The meeting, held in Vancouver in 2017, included presentations from five countries across three continents.
The Summary Report on Aging and Autism addresses strategies and solutions and begins building a framework for best practices for aging adults on the autism spectrum. The report focuses on three themes: 1) Understanding aging on the autism spectrum; 2) Supporting autistic adults; 3) Developing appropriate research methodologies and outcome measures for future work on autism and aging.
"It is imperative that we understand the needs of older adults and autistic seniors. Every year, more and more adults are transitioning into middle age and with that comes health and service challenges," says Laurie Mawlam, Executive Director of Autism Canada. "We want to be well-prepared."
Every parent with a child on the spectrum wonders what will happen when they are gone -- and when their autistic son or daughter is an older adult or senior. While there is a robust understanding of life course, gerontological and geriatric conditions for most aging individuals, little is known about aging with autism. This report is intended to enlighten policy makers, professionals, researchers, clinicians and families.
"We need to be looking at this issue now," says Dr. Suzanne Lewis, Director and Chair of Autism Canada's Professional Advisors Committee. "Collaboration is the best way forward to avoid duplication of research and expeditiously find the answers we need."
Dr. Kevin Stoddart, Director of The Redpath Centre and Member of the Autism Canada Professional Advisors Committee, agrees: "So much emphasis in research and clinical supports continues to be on early intervention and children. Our lack of recognition that autism is a life-long condition is especially troubling when we think of those over 50. We need to work with autistic adults and their families to ensure we get this right."
The report will generate momentum and opportunity to expand its scope and reach. Autism Canada intends to build on its success and to further the conversation and research into autism and aging.
One in 66 Canadian children and youth are on the autism spectrum
New data underscores the urgent need for services and a synchronized national strategy.
March 29, 2018 (Bothwell, ON) - Autism Canada welcomes the release of the Public Health Agency of Canada's (PHAC) Canadian Autism Spectrum Disorder (ASD) prevalence rates.
The report finds that 1 in 66 Canadian children and youth ages five to 17 are on the autism spectrum. The finding is based on analysis of 2015 data supplied by six provinces and one territory.
"1 in 66, the number released in the PHAC report, reflects what we're witnessing in the autism community - that the prevalence of autism is on the rise. Regardless if this increase is due to better diagnostics, increased awareness or increased incidence, there is an urgent need for a national autism strategy. This long-awaited Canadian data will be invaluable for planning and budgeting for services to support Canadians living with autism," says Laurie Mawlam, Executive Director at Autism Canada.
"For too long, Canadian organizations and policy-makers have been operating without a clear line of sight on the true magnitude of the situation. We've been relying on American data as our only source of quantitative information," adds Mawlam.
Wait lists for essential services across the country and in every province and territory in Canada highlight that autism families are not getting the supports they need to flourish.
"It has been 11 years since the Standing Senate Committee on Social Affairs, Science and Technology released their report, Pay Now or Pay Later - Autism Families in Crisis. While the most recent federal budget announcement begins to address some of the action items recommended in that report, there is still much more work to be done," adds Mawlam.
Studies have shown that access to early interventions, based on the scientifically proven principles of Applied Behavioural Analysis (ABA), speech and occupational therapies, and other evidence-based therapies provide positive results in cognitive development, language and communication, as well as social and emotional development. Ultimately, these positive results decrease the need for ongoing intensive supports into adulthood.
"The time is now for the federal government to work with provincial and territorial governments to create a national autism strategy," says Dermot Cleary, Board Chair of Autism Canada. "There are critical shortfalls for autistics, not only for early interventions, but for adults on the spectrum in the areas of education, employment, medical care and housing."
PEERS - Parents & Teens aged 12-13 - Helping Teens with ASD Make & Keep Friends When Thu, 12, 19, 26 April, 18:30 – 20:00 DescriptionHelping Teens with ASD Make & Keep Friends For teens with ASD who want to initiate and develop friendships About the program: Using the PEERS evidence-based social skills program and facilitated by POPARD consultants with PEERS certification, teens and their parents will meet in separate groups during this 14-sessio program. The tee group will go through the lessons and roleplays while parents learn strategies to support their teen at home. Topics include two-way conversation, get-togethers and more. Date: Thursdays, February 8 – May 24, 2017 (no sessions on March 22 and 29) Time: 6:30 – 8:00 pm Admin Fee: $100 Who attends: Parents& Teens aged 12-13
POPARD - Parent Education & Support Series When Fri, 13 April, 09:30 – 11:30 Description Working with your school team. For Parents with children with autism.
A Six-Part Series for families with children on the autism spectrum. You may register for any or all of the following sessions:
January 12: Family School Collaboration - The 4 A’s
February 9: The IEP – Roles and Responsibilities
March 9: Navigating the School System
April 13: Behaviour Challenges at home and School
May 11: ASD and Mental Health
June 8: Summer and School Transitions
You may contact POPARD’s Family-School Liaison by emailing Dr. Lisa Woudzia at [email protected] Or call 604-373-3130 Toll-free: 877-286-0146
PAFN Employment Club When Fri, 13, 29, 27 April, March 4 10:00 – 12:00 Description Come network and meet with other individuals on the spectrum looking for work. Hear about employment programs and supports, share job finding tips and support each other in your employment journey! Please RSVP to [email protected]com
LEGO Superhero Academy! When Start Sat, 14 April, 10:30 – 12:00 DescriptionLEGO Superhero Academy! It's a bird! It's a plane! It's...Learn the art of the Superhero at Superhero Academy! Join the Avengers as they conquer evil and lurk in the shadows with the Bat Clan. But be warned, as a superhero there is no fame, no fun, and no fortune –only justice! All students go home with a custom-made mini figure. AtBricks4Kidz, we do our best to ensure a safe, fun, and energetic environment for all children participating in our programs, but please be aware that wewill be working with small parts that may become a hazard if ingested. Dates: Saturdays, April 14 - June 23 (Break for Victoria Day Long Weekend on May 19) Program Fee: $199 for all 10 sessions For more information contact:[email protected] Registration Link: https://autismbc.z2systems.com/np/clients/autismbc/event.jsp?event=328
Minecraft Club When Thu, 26 April, 17:30 – 19:00 Description Hosted by Autism BC and Pacific Autism Family Network Run by a parent volunteer, Minecraft Group is an inclusive space for Minecraft enthusiasts to come together and play! Our mission is to inspire connection through sharing tips, tricks and playing together!
Who? All are welcome! Players should be able to log themselves in and have a basic understanding of the game as this is a come together space and no formal Minecraft instruction will be offered (except from the person beside you who may be able to lend some tricks!)
At this beginning stage, you should bring the portable device that you play on (iPad, laptop, tablet) FREE Wifi is available! We are capped at 20 Minecrafters for the space so please RSVP to[email protected]if you'd like to attend.
PAFN Group Therapy: Living Well with Anxiety When Sat, 28 & 29 April, 10:00 – 12:00 Description This is an 8-week group on Saturdays 10:00 am - 12 pm starting April 28. For registration and cost detail, please contact Rebecca Farnell at: [email protected]com Or call 604-207-1980
Pokémon Club Juniors When Sat, 5 May, 15:00 – 16:45) Description A new Pokémon club for 6-14 year olds is her at the Pacific Autism Family Network! The club is a place for kids to come together and socialize about a common interest. Kids can bring their Pokémon cards, games, Nintendo DS, stuffies, toys, clothing, costumes, or anything else Pokémon related. Kids that are new to Pokémon also welcome! When: First Saturday of every month Time: 3:00 – 4:45 pm Where: Pacific Autism Family Network 3688 Cessna Dr, Richmond, BC For questions or to add yourself to the email distribution list, please email: [email protected]
Launch into Life! North/West Vancouver Transitioning into Adulthood Workshop Series #2 Families with Higher Support Needs
Transitioning into adulthood and the community beyond high school can be challenging for individuals with autism and their families. Comprehensive transition planning can help to manage the challenges during this time and maximize potential for each person to live a full and meaningful life.
Launch into Life! helps families to prepare for and respond to key life transitions, and guide the journey from adolescence to adulthood. It helps families to focus on discovering personal strengths and areas for growth based on their youth’s individual interests, abilities, and needs by answering three key questions:
Where are we now? (assessment) Where do we want to go? (goal setting) How are we going to get there? (implementation)
We are pleased to offer the Launch into Life! workshop series that helps families to create an Individualized Transition Plan for their child and provides valuable information in the following domains: · Education and Employment · Health and Well Being · Communication and Social Relationships · Independent Living Skills and Self-Advocacy · Legal and Financial Issues
Date/Time: April 9th - 6:30 - 9:30pm (Parents/Caregivers) April 16th - 6:30 - 9:30pm (Parents/Caregivers and Youth) April 23rd - 6:30 - 9:30pm )Parents/Caregivers)
Who should attend? Families and youth (13+) living with ASD and other developmental disabilities. Youth attendance is not mandatory, but welcome for the April 16th session with your family support worker (if appropriate) in a facilitated breakout session to identify goals and participate in in creating an individualized transition plan. The AutismBC Kelowna Community Group Proudly Presents: The Meridian Rehab Team - Robert Schramm, BCBA; Staci Cooper, SLP; and Kim Long, OT What is the role of a Behaviour Consultant, Speech Language Pathologist and Occupational Therapist? Bring Your Questions to ask the Experts Please note our NEW VENUE kindly donated by Autism Okanagan #200-2000 Spall Road (Above L.C Fashions) Monday, April 9th 7:00pm - 9:00pm RSVP to [email protected]
“Buzz off Butterflies! Anxiety and Autism” by Rubina Mangat, BCBA, RCC, NCC
Topic: Buzz off butterflies! A closer look at what Anxiety is, how it impacts children with Autism and the various approaches to help: through ABA, 1-1 counselling and group treatment.
Anxiety has found its way as a mainstream word in popular culture, to explain a degree of emotions: worried, nervous, stressed out, panicked, excited and afraid. Though there are benefits in having this term more readily used and accepted in society, it also creates the perfect environment for the clinical term to be misunderstood, misused and mistreated.
In our discussion Rubina will go over the following: -“I’m pretty sure I know what anxiety is Rubina. You can skip this part!”… But do you really? -Not everything is as it seems! Just like Autism, Anxiety can be on a spectrum and experienced differently by different children. -I know it can feel overwhelming sorting through the resources and finding the right approach for your child, let’s figure it out together!
Speaker: Rubina Mangat is a Behaviour Consultant (BCBA), Registered Clinical Counsellor (RCC), and she was certified in behaviour therapy training for obsessive-compulsive disorder (OCD) and other anxiety based disorders. Rubina has over 15 years of clinical experience providing behaviour intervention, counselling and support to a multitude of clientele ranging from 2 years old to 65 and older, with mild to severe mental and behaviour health concerns. She has worked with a variety of agencies in both B.C. and abroad, including but not limited to: LifeWorks North-West the Forensic Psychiatric Services Commissions, School Districts 41 and 36 as well as Share Society. Rubina uses Cognitive Behaviour Therapy, Applied Behaviour Analysis, Collaborating Problem Solving, and Dialectical Behaviour Therapy as her treatment approaches. Currently Rubina provides consultation services to schools, families, teens and children across the lower mainland. She offers home based support, individual counselling and group treatments. Learn more by visiting:www.SupportedGuidance.com
DESCRIPTION Join us on Friday, April 20 as the autism community of British Columbia come together at the Goodlife Family Autism Hub, Richmond to celebrate the achievements of people and organizations who enhance the lives of individuals affected by autism across the province. In their inaugural year, the awards will recognize and reward professionals, self-advocates, volunteers and businesses that have been vocal in their advocacy work for pushing communities towards an inclusive society where people on the autism spectrum can reach their full potential. Schedule of Event 7.30pm: Arrival, light artisan buffet fare will be served with music from Luc Picard and Besha You. 8.15pm: Awards begin, hosted by Jake Anthony 9pm: Short Break 9.10pm: Awards resume 9.45pm: Awards end Tickets are $40 per person and include entry to the event, welcome drink and light artisan buffet fare. There will be a cash bar avaliable serving additional wine, beer and soft drinks. ORDER YOUR TICKETS HERE We are pleased to announce our 2018 shortlisted nominees: Volunteer of the YearSponsored by Applewood Auto Group Abbe Gates Dennis Nerpio Suzanne Perreault Vicky Ryan Self-Advocate of the Year Sponsored by AllWest Insurance Brody Butts Cassandra Fyfe Nicole Provost Marcel Duruisseau Business of the YearSponsored by Adecco Evan's Consulting Ltd Gabi & Jules Handmade Pies Kenneth Gordon Maplewood School Sirota's Alchymy - Martial Arts & Life Skills Centre Professional of the Year Sponsored by AutismBC Chris Arnold Grace larocci Jade Whittiker Patricia Kenned With thanks to our committee: Kristin Bower Diversity & Inclusion Manager at Vancity Dr. Glen Davies Director of ABLE Clinic Katy Harandi President and Chief Executive Officer of Canucks Autism Network Wendy Lisogar-Cocchia O.B.C., LL.D. (Hon) Founder of Pacific Autism Family Network Corey Walker Northern BC Regional Coordinator at AutismBC
Burnaby Coffee Meet-Up This meeting is for parents of young kids from pre-school age (2-4 years old) up to school age. The purpose of our meeting is to support each other as we start or refresh our autism journey, knowing we are not alone but there is an autism community to support us. We seek and share info and personal stories. I will facilitate this meeting and send follow up email for information discussed.
Please confirm if you are able to come and if there are other suggestions. RSVP to [email protected]
Date: Friday April 20th Time: 10:00 to 11:30AM Location: La Fontana Café - #101 (street level) - 3701 Hastings St, Burnaby (at the NE corner of Boundary and Hastings). These informal meetings help caregivers who have a family member with autism, connect with other caregivers in their community. They meet regularly, typically for an hour, however sometimes caregivers want to stay a bit longer to connect and that is fine too!
BI Basic Training Workshop - Fort St. John Saturday, April 21 to Sunday, April 22 9:30am - 4:30pm Join us for a two-day training workshop on the implementation of autism behaviour plans. You will leave this course with knowledge and practical tools you can use in the classrooms, or home environment. Past attendees have included, parents, community group leaders, students, educators, classroom assistants and other individuals who work with/support children with an ASD diagnosis. Upon completion of this 2-day course you will be sent a certificate to confirm your attendance. This course counts towards 14hrs of BI training. Topics to be covered each day include: Day 1 Core elements of discrete trial teaching Functions and behaviour Reinforcement techniques Prompting techniques Process of teaching from introductory to generalization to mastery Ethics The process of accurate data collection Day 2 Antecedent and established operations Reinforcement assessment of preference Token economics Prompting and prompt-fading strategies Teaching techniques Analyisis of data Peer play facilitation Maintenance and generalization of learned skills Venue: Pomeroy Sports Centre 9324 96th Street Cost: $100 (AutismBC members) and $125 (Non Members)
BI Basic Training Workshop - Richmond Saturday, April 21 to Sunday April 22 9:30am - 4:30pm Join us for a two-day training workshop on the implementation of autism behaviour plans. You will leave this course with knowledge and practical tools you can use in the classrooms, or home environment. Past attendees have included, parents, community group leaders, students, educators, classroom assistants and other individuals who work with/support children with an ASD diagnosis. Upon completion of this 2-day course you will be sent a certificate to confirm your attendance. This course counts towards 14hrs of BI training. Topics to be covered each day include: Day 1 Core elements of discrete trial teaching Functions and behaviour Reinforcement techniques Prompting techniques Process of teaching from introductory to generalization to mastery Ethics The process of accurate data collection Day 2 Antecedent and established operations Reinforcement assessment of preference Token economics Prompting and prompt-fading strategies Teaching techniques Analyisis of data Peer play facilitation Maintenance and generalization of learned skills Venue: 3688 Cessna Drive 3rd floor (Pacific Autism Family Centre) Cost: $100 (AutismBC members) and $125 (Non Members)
BI Basic Training Workshop - Kelowna Saturday, April 28 to Sunday April 29 9:30am - 4:30pm Join us for a two-day training workshop on the implementation of autism behaviour plans. You will leave this course with knowledge and practical tools you can use in the classrooms, or home environment. Past attendees have included, parents, community group leaders, students, educators, classroom assistants and other individuals who work with/support children with an ASD diagnosis. Upon completion of this 2-day course you will be sent a certificate to confirm your attendance. This course counts towards 14hrs of BI training. Topics to be covered each day include: Day 1 Core elements of discrete trial teaching Functions and behaviour Reinforcement techniques Prompting techniques Process of teaching from introductory to generalization to mastery Ethics The process of accurate data collection Day 2 Antecedent and established operations Reinforcement assessment of preference Token economics Prompting and prompt-fading strategies Teaching techniques Analyisis of data Peer play facilitation Maintenance and generalization of learned skills Venue: #200 - 2000 Spall Road Autism Okanagan (Pacific Autism Family Centre) Cost: $100 (AutismBC members) and $125 (Non Members)
Challenger Baseball Players: If you’d like to see your child enjoy the thrill of playing baseball in a fun environment designed for all levels of ability from ages 9 and up then Challenger Baseball is for you. Challenger baseball is about inclusion for children with special needs having fun with some friends in a non-competitive game of baseball. Each player will be assigned a buddy of similar age to assist them during the game. No score, everyone plays and everybody wins. Challenger Baseball registration is linked to the Tsawwassen Amateur Baseball Association (TABA) website at:
A Meet up for PLAN Siblings Are you the brother or sister of someone with a disability? Would you like to connect with other siblings and meet the team at PLAN?
On April 9, we are hosting a meet-up for the siblings of PLAN's Lifetime Members - can you join us? There is no formal agenda - just an opportunity to meet some new people in a casual environment!
Here are the details:
Monday, April 9, 2018 6:00 to 7:30 pm (you can drop in anytime) The Lounge at JOEY Burnaby 109 - 1899 Rosser Avenue - MAP
JOEY Burnaby is located just a few blocks away from Brentwood Skytrain Station. Because this gathering will take place in the lounge, you do need to be 19 + to attend. To make sure we book the right amount of tables, it would be helpful if you could RSVP by Friday, April 6. You can email [email protected] or connect with your Mentor. Hope to see you on April 9!
The Phil Allen President's Award
Phil Allen contributed so much to all of us, and BC People First have come up with a perfect way to honour his incredible legacy. Earlier this month, the first-ever Phil Allen President's Award was given to Lorie Sherritt for her outstanding excellence and leadership in the self advocacy movement. Like Phil, Sherrie has been a leader in promoting community inclusion and making sure all citizens are recognized for the important contributions they have to make. Making this day even more special is that the award was presented by Phil's wife, Wendy Allen. Congratulations Lorrie!
Upcoming PLAN Events for 2018
To help plan your annual calendar, we wanted to share the dates of the upcoming PLAN events that will take place for the rest of 2018. Please save the following dates: Lifetime Membership Luncheon - taking place Saturday, June 9 at the Allan Emmott Centre in Burnaby. This replaces the luncheon previously scheduled for May 12, and will feature PLAN Co-founder Vickie Cammack. Summer Picnic - taking place Saturday, August 18 at Queen's Park in New Westminster. Annual General Meeting - taking place Wednesday, September 26 at Creekside Community Centre in Vancouver. Holiday Celebration - taking place Saturday, December 1 at the Allan Emmott Centre in Burnaby. Additional information, including specific times, will be provided closer to the actual events. If you have any questions, please don't hesitate to email [email protected] or connect with your Mentor.
Recent Stories and Updates Posted on our Blog
Over the past couple of weeks, we've posted new stories on our blog. Please click here to read the following posts: What happens to our sons and daughters with disabilities when we die? Caregivers Never Get Sick, Right? Hi, I am Nikki Mitchell Networks Go Round and Round Today is International Women's Day If you would like to make the font size larger when viewing our website, you can do so by clicking in the top right corner of the page.
Please email Adam at [email protected] if you have a story you'd like to share on our blog. He can provide any support you need to document your story, including chatting by phone, or meeting you in person.
Where: Pacific Autism Family Network Hub - 3688 Cessna Drive, Richmond Description: Do you know a child, teen, or young adult who loves to sing or dance, and would benefit from meeting an empathetic and team-minded peer group, but struggles in social settings? Who would enjoy being mentored by like-minded young adults, and being part of an award-winning performance crew? The Mayday Club Youth Choir for Neurodiversity is now accepting applicants of all ability levels, between the ages of 5 and 30, to be part of our choral singing and hip-hop dancing performance crew for 2017 / 2018. Train under some amazing instructors, make friends, and tour the province to build confidence, and advocate for a cause you believe in! Visit us online at www.maydayclub.ca
LM GC - Let's Talk About Sex, Baby · Thursday, April 12, 2018
· 6:30 PM 8:30 PM
Our "Sex & Sexuality" night will be an opportunity for our GIRLS to participate in a presentation specific to them, and to ask questions as well. This is a frank discussion about sex and sexuality best suited for GIRLS age 13 years and up....
The parent discussion will be separate. Please see the specific event invitation for details or contact Vicky for questions and information: [email protected]
OK GC - Dance & Face Painting Party! · Sunday, April 15, 2018
· 11:00 AM 12:00 PM
Come join us for our Dance Party..... and awesome Face Panting with Kiki the Eco Elf!!
Come and enjoy everyone’s favourite children’s entertainer Kiki the Eco Elf as she leads our GIRLS in a fun-filled dance party followed by her extraordinary face painting!
OK - GC - Vernon's Annual Autism Awareness Walk & BBQ · Sunday, April 22, 2018
· 1:00 PM 3:00 PM
Vernon's 5th Annual Autism Awareness Walk and BBQ Join our GIRL - Okanagan Chapter Director - BREE CAWLEY at the walk & bbq!
Bree will attend on behalf of GIRLS CLUB to promote our group, and spread the word to more sisters join us! Polson Park, Vernon BC
LM GC - Painting Party! · Sunday, April 29, 2018
· 1:00 PM 2:30 PM
Please pass the video on to others. It may help another family.
Quote of the month: "“Think of it: a disability is usually defined in terms of what is missing.… But autism … is as much about what is abundant as what is missing, an over-expression of the very traits that make our species unique.”
By: Paul Collins, Not Even Wrong: Adventures in Autism'"
PO Box 27351 Garden City PO
Richmond, British Columbia V6Y 3Y8